2014
July 24 – My Consultation
Amy (my daughter) and I met with a physician’s assistant at Ochsner this afternoon. The consultation lasted two hours and I was given a large binder of information to read to help me make the decisions I need to make. Talk about “informed decisions!” :)
One thing I learned at this meeting is that I will definitely need chemo because whether or not my lymph nodes contain cancer cells (which I first thought was the only determining factor in whether or not I would need chemo), the type of cancer I have is the most aggressive. It is what they term “triple negative” with regard to “receptors.” Here’s how they explained it: Most cancers are dependent on between 1-3 types of hormones to grow. Triple negative breast cancer can grow without the presence of any of those receptors. It doesn’t need anything to help it grow — which is what makes it aggressive and more likely to spread. That being said, they are still considering me to be at stage one — which has a very high rate for survival.
I will have two tests next week — a genetic test to see if I have “the gene” (don’t remember what it is called). And, I will have an MRI so they can get more data. It will take about two weeks for the results. These results will be a big factor in several decisions with my surgery and treatment. I get to choose whether I want the six months of chemo, then the surgery, or the surgery and then six months of chemo. (May need radiation after the chemo, too.) At this point, I’m leaning toward surgery first and then chemo. And, surgery would probably be about three weeks from now.
July 28, 2014 – M.D. Anderson
I’ve made a decision to get my treatment at M.D. Anderson Cancer Center in Houston. Although there are a few drawbacks to going to this hospital (out of town, and out of my insurance network), because of the type of cancer I have (“TNBC”) I think it is worth the trade off to know that I am getting the best treatment possible. I am now working with MDA to supply them with the reports, etc. they need to set up my appointment. They are supposed to call me in a couple of days (after a team of doctors reviews my reports) and we will schedule my first appointment, which I was told will be in one or two weeks. Will post an update when I know my exact appointment date.
Working now to get all my “ducks in a row” before my treatment begins. May go wig shopping this weekend. :)
July 29 – M.D. Anderson Appointment Scheduled
Amy and I will be driving to M. D. Anderson in Houston on Saturday. Appointments are set for this Sunday (tests) and Monday (consultation with surgeon). And, there is the possibility of additional tests after Monday. When we meet with the surgeon, we’ll also be given the surgery date. I’m ready to get this “show on the road” and start doing battle with those cancer cells! :)
July 30 – I Turned 60 Today … and I am Thankful!
Today, on my birthday, my heart is full. I am thankful for that October night in 1975 when I made a decision to follow the Lord. That one decision altered the course of my life — and is the source of filling my deepest needs — especially during this time. And, I am so very thankful for my incredible family and friends! I have always felt loved and supported by you — but the outpouring of love and support you have shown me in my current health situation is both overwhelming and humbling. Thank you so much for your prayers, your sweet words, and for all you are doing. Love you!
July 30 – My Birthday Just Got More Interesting! :)
M.D. Anderson just called and changed the day for my tests from 8/3 (Sun) to 8/1 (Fri). So, Amy and I now need to leave tomorrow (instead of Saturday) to drive to Houston. I’m receiving a lot of birthday wishes, and well wishes today that I won’t be able to respond to because we now have to scramble to get things ready to leave. But, please know that as soon as I can, I will read your messages and listen to your phone messages. And, thanks so much for thinking of me!
July 31 – Amen to This Poem!
I’ve seen this poem before, but had forgotten about it. Just read it in a book someone gave me and I think it is worth passing on. Can apply to any disease. For a couple of years now, I have witnessed this poem lived out in the lives of my dear friends Kenny and Sheryl Lee — in Kenny’s battle with MSA (Multiple System Atrophy).
It cannot cripple love,
It cannot shatter hope,
It cannot corrode faith,
It cannot eat away peace,
It cannot invade the soul,
It cannot reduce eternal life,
It cannot quench the spirit.
(Author Unknown)
August 1 – My First Day at M D Anderson
M.D. Anderson is an amazing place! I’ve met many people already and heard some neat stories. Happy to be here! I had several tests today, including a scare with the discovery of another spot on my left side which was 6mm, but further testing confirmed that spot was benign. The tests also confirmed that there are no changes in the tumor size since the diagnosis. And, M.D. Anderson does not see evidence that there is cancer in my lymph nodes (which means a high likelihood that there is none). At the time of surgery this will hopefully be confirmed. Amy and I now have some much-needed downtime. (By the way, she has been incredible! What a special daughter God gave me!) Next appointment isn’t till Monday afternoon with the surgeon. Until then, we will get some rest, and have some fun. :) Hope you all have a great weekend!
August 4 – The “Game Plan” is Forming
About my “game plan” …
I will begin with about six months of chemo, and approximately three weeks after the chemo is completed I will have surgery. Although in some ways, the order of treatment (chemo then surgery, or surgery then chemo) is equal, the doctor explained a few advantages of having the chemo first when the triple negative component is present.
Amy and I are headed home now. I will fly back to Houston (just for the day) this Wednesday to meet with my oncologist. From there, depending on what type of chemo is prescribed, I may be able to have my treatments at a hospital in the N.O. area (overseen by M.D. Anderson). Otherwise, I will need to travel to/from Houston for each treatment. After chemo is over, I will have my surgery in Houston at M.D. Anderson. And, after that …
I will live happily ever after. :)
August 6 – More on The “Game Plan”
I flew to Houston today for the first appointment with my oncologist at M. D. Anderson.
The plan is for me to have 20 chemo treatments, then about a three week break and then my surgery (surgery will be at MDA). I will have chemo once a week for 12 weeks. After that is completed, I will have a different (stronger) chemo once every two weeks over an 8 week period.
As soon as I locate a local oncologist who is willing to administer what MDA is recommending, the chemo will begin. If I am not able to get the chemo started very soon locally (within about the next week or week-and-a-half) I will return to MDA to begin treatment, with the possibility of transferring my chemo here to N.O. as soon as I am able to make arrangements for that.
I have appointments scheduled next week with three different local oncologists. I have a preference, but who I choose will mainly be determined by who can start the chemo first. From what the MDA oncologist said, although she highly recommends surgery at MDA (and radiation, if that is something we need to do later), she is perfectly comfortable with me getting the chemo locally as long it is given according to her plan.
She said chemo is a “science” and it doesn’t matter where it is administered as long as whoever I choose administers what she wants me to have. I will return to MDA at least 4 times during the 20 weeks of chemo for ultrasounds to see if the tumor is shrinking. I learned Monday that there are two types of triple negative cancers — one of which is “the lesser of the evils.” If my tumor responds well to the chemo, we will know that I have the more preferable type of triple negative cancer. So, that is what I am praying for.
The doctor today was very optimistic about me kicking this cancer. She re-iterated what we have heard from others — that my otherwise great health should help me through this. I know the next months will not be easy, but I am very ready to begin the process!
I found out that MDA gives a free wig to each cancer patient, so I got my first wig today. :) There were not many to choose from. The one I got is a little “blonder” than I wanted, but I really love the style. Honestly, I like it better than my own hair. :)
August 11 – Test Results / Chemo Scheduled
I received some good news today … test results from my BRAC (genetic) test came back negative. :)
I’m set to begin chemo in New Orleans this Friday at 9AM and very happy to be starting this process. I know that every day of treatment is one day closer to being healthy again.
I cannot thank everyone enough for your prayers, cards, emails, messages, gifts, phone calls, visits and offers to run errands, do chores and to drop off some food! I have been brought to tears several times over the past weeks because of your incredibly generous and kind hearts!!! I have the best family and friends anyone could ask for!
Numerous people have asked me to let them know “specifically” what I need and how they can help. Hope you don’t mind me replying to you in a group email as opposed to replying individually.
Here are some things that come to mind …
Prayer – Knowing that so many people are praying for me is so comforting.
Words of Encouragement – God has given me so much peace throughout these weeks. I hope that even with the side effects of the chemo I can remain at peace, strong and encouraged. I’ll be in chemo for five months, so if you ever run across an uplifting scripture, quote or article and think it might be something helpful for me to read, I would appreciate if you would email it to me or snail mail it to me.
Referrals – Because the type of breast cancer I have is not common, I am hoping to find other people who have had the same kind of cancer (TNBC). I have already found two local people. If you know of any breast cancer survivors who had TNBC, and if they would be willing to talk with me, please let me know.
Errands & Chores – I am really hoping to be able to work at least part time for the first 12 weeks of my chemo. Amy will probably be able to handle a lot of the errands and chores, but she may need help at times. I think it is more likely that we’ll need help during the second phase of my chemo in about three months (the 8 weeks of more intense chemo) and for the surgery that will follow. To the many who have already offered to help, Amy or I will let you know if something comes up. And, even if there turns out to not be a need, we so appreciate that you have offered!
Food – I will be on a very strict diet over the next 7-8 months, so there are many foods that I would normally love that I won’t be able to eat for awhile. Also, I’ve learned that chemo often impacts people’s taste buds, so some things I would have enjoyed, I may not have an appetite for. As time goes on, I will figure out what foods I am able to eat, and enjoy. For those who offered to drop off some food, please check with me or Amy if you’d like ideas.
Fundraisers – There are a couple of fundraisers in the works to help with my extra medical expenses, travel to/from M. D. Anderson, and my lost wages. My sweet cousin, Gwenn Black has offered to coordinate this info.
Thanks again for all of your prayers, your kind and generous words, gifts and offers!!!
August 13 – Prayer Request
I am praying that God will give me the discernment I need for two important and time-sensitive decisions. I am currently scheduled for chemo this Friday at 9AM through East Jefferson. When I scheduled this, I let the oncologist know that I had two more oncologists to meet with before making my final decision (one at Touro and one at Ochsner). I met with the doctor at Touro today and meet tomorrow morning with the oncologist at Ochsner. I need to make a decision by about noon tomorrow so that whoever I go with can get the insurance approval and schedule the chemo (or, in the case of E.J., cancel the chemo). Also, the doctor today stongly recommends a chemo treatment plan that is different from the one recommended by M.D. Anderson–the same chemo, just less and spaced differently. He said he had patients with permanent heart damage and permanant neuropathy because of having the amount of these chemos that M.D. Anderson is recommending. He is hoping to speak early tomorrow with my oncologist at M.D. Anderson. I am hoping they will have a “meeting of the minds” and come up with an agreement on the treatment regimen.
Would appreciate your prayers.
Thanks!
August 14 – Local Oncologist Chosen
Thankfully, I don’t have to make the decision about which chemo regimen to go with. And, I am totally at peace with my choice of oncologists. (Thanks for your prayers!) After meeting with Dr. Cole (at Ochsner) today, I decided that he would be my oncologist. Here are some of the reasons why I like him:
He volunteered (without me asking) that if I had met with him and had never been to M. D. Anderson, he would have recommended the exact same treatment plan that my oncologist at MDA recommended. I told him about the opinions of the Touro oncologist and how what he said seems logical. Then, he explained his reason for why he believes the spacing of the chemo should be as M.D. Anderson recommends. He and the East Jefferson doctor were on the same page about this. They basically said that with triple negative breast cancer, it is so aggressive that you have to hit it with everything you’ve got for the best chance of survival. So, I will be having the lifetime limit of three chemos.
I was impressed to learn (from someone else, not him) that Dr. Cole is on a team of doctors, along with LSU Medical, doing genetic research that, if they are successful, when someone gets breast cancer it will allow doctors to be able to determine the most effective chemo for that particular tumor before beginning treatment. He is definitely more “brainy” than “warm fuzzy” but he was warm enough, explained things in detail when I questioned him, and didn’t seem put off by my questions.
And, it was a very pleasant surprise for me to find out that he already has a working relationship with Dr. Karaturi (my MDA oncologist) because they have a few patients in common. In fact, he said he just spoke with her a few days ago.
Additionally, Ochsner is where all of my doctors are, and the area where people receive chemo is absolutely beautiful and serene, state of the art.
I will still have my first chemo treatment tomorrow, but it will be at 1:30PM instead of 9AM. Amy will be with me. I am very happy to have finally decided on a local oncologist and to be starting my treatment!
Now … time to go play “hard ball” with those cancer cells! :)
August 15 – Back Home from First Chemo :)
Completed the first chemo and I’m very thankful that all went well! I was given some pre-meds to lower my risk of having a reaction to the chemo. One was Benadryl which made me very groggy. Still feeling the effects. Was also given steroids which I was told will have me up all night. You’d think one would cancel out the other, but the nurse said it doesn’t work that way. :) Great to have the first chemo over!
August 20 – What a Difference a Day Makes!
Yesterday, I went for my annual physical and, based on my lab results, the doctor highly suspected I have a kidney stone and/or infection. Tests were done for each. The possibility that I could have an infection was very concerning to me because I wasn’t sure how that would impact my next chemo treatment (scheduled for this Friday).
Then, early evening I received a call with results from the MRI that was done Monday. I was told that I actually have stage two cancer (not stage one); tumor size is 2.5 cm (not 1.4, as the ultrasound indicated.)
Needless to say, yesterday’s news was very disappointing. But, I’m thankful for family and friends (and my pastor) who encouraged me and prayed with me last night.
And, then came this morning. I woke up thinking, “It’s a new day!” Thankfully, the weight of yesterday’s news was lifted.
Then, I had an early appointment with the oncology dietician at Ochsner. (Very helpful!) As I was leaving the building, I spotted Robin, the oncology navigator. I had met with her week before last. I went to talk with her. We talked about the news I had gotten yesterday. I was very relieved to find out from her that even if I have an infection, but do not have fever, I can still have chemo.
Robin then asked me if I was in a hurry to leave, or if I could stay for a little bit. She said the reason she asked is that she was getting ready to greet a Christian ministry (www.compassionthatcompels.org) that is coming to deliver really nice bags of helpful supplies to women with cancer. When they arrived, I was introduced to Kristianne (the ministry director – in the picture with me) and the other ladies in the ministry. We talked. We laughed. We cried. And, we all prayed together. What a special time of fellowship we had! And, we have plans to keep in touch. :) (Thank you, Lord, for providing this wonderful morning!)
Oh … and the good continued. No infection! And, there is only (in the doctor’s words) a “tiny” calcification in one of my kidneys. A non-issue with regard to chemo. So, chemo #2 is set for this Friday. :)
August 22 – You’re Invited …
My awesome friends from work are hosting a victory party for me on Saturday, September 6. If you have not received their invitation and would like more info, please email Allyson Tuttle at allysondorsey@hotmail.com. (If you get her voicemail, just leave her your email address and she will send you a flyer).
August 23 – A Full Day
Yesterday was a full day! Amy and I had to be at Ochsner for 5:30AM for my 7AM procedure — putting in a port. All went well! So happy to have the port in now so I won’t have to feel the uncomfortableness of all those shots and IVs (and from what the doctor told me — the port also helps my veins to not become damaged). While under anesthesia I told the doctors some “interesting” things. :) Amy and I both got a good laugh about it afterwards. Arrived back home from the procedure at 11:45 and we had to be back there for 1:30 for chemo – which went very well. Back home about 4:45. The drugs I’m given prior to chemo make me totally groggy and sleepy so I crash as soon as I get home. Last week and this week I woke up in the middle of the night, stayed up a few hours, and then slept a couple more hours till daybreak. I feel very refreshed because of all the good sleep. :)
August 30 – Thank You!!! / Meeting With Oncologist / Chemo
Thank You!!!
To the many people who have prayed for me, emailed me, called me, visited, sent me cards, donations, and gifts, and who have helped in other ways, I appreciate you so much and everything you have done! It has helped me much more than you know! At some point when time permits (can’t even describe the whirlwind of activity these last six weeks!) I hope to be able to contact you personally to thank you. But, for now, please know that your kindness and generosity have been an incredible blessing to me!
Meeting With Oncologist
Amy and I met with Dr. Cole (Ochsner oncologist) yesterday morning and he was able to clear up a few things for me:
* There are several things that can be done so that I will not have to interrupt chemo if my white blood cell count becomes too low. This was a relief to me because chemo lowers blood counts and my WBC count has run low for the last few years – long before this cancer, so this has been a concern. As of my lab report yesterday, it is even lower now than before but not at the point where I need the additional measures.
* It is not necessary for me to wear a mask now. (Based on reading material I had been given about chemo I thought I should be wearing a mask.) However, it is obviously essential for me to stay clear of anyone who is sick or who has been around others who are sick – especially since my WBC count is below norm.
* I don’t have to overhaul my diet as much as I thought. A few adjustments, but that is all. It’s still recommended that I eat a very healthy diet. But, I was doing that to a large degree anyway.
He also told me that my stage is 2A (not 2) since there are no visible signs of cancer being in my lymph nodes. Also, MRI does not show that cancer has attached to my chest wall – which is a very good thing. Dr. Cole said that we don’t need to focus on the fact that MRI shows tumor to be 2.5 cm instead of 1.4 cm. He said that our focus needs to be what size will the tumor be after chemo treatment (pre-surgery). He said in most cases, it will be totally gone or close to it. (In case you’re wondering, if it is totally gone, why would surgery be necessary?) They don’t really know the full picture until they go in for surgery.
Chemo
Yesterday afternoon I went for my regularly planned chemo treatment.
Chemo is becoming quite predictable. Amy and I get there for 1:30 on Fridays. They start the IV with three different bags of pre-meds: Benadryl, steroids and Zantec. All of these meds are to help prevent me having a reaction to the chemo. Chemo follows. I am all cozy in my chair: wrapped in the cushy bed jacket that Alice Huff (my cousin-in-law) gave me, and two blankets (one from Compassion That Compels ministry, and one hand-knitted from the ministry of my friend Carol Drouant’s church). Benadryl is given first and it knocks me out. Once in awhile in the 2.5 hours in the chair my eye’s pop open, but mainly I’m asleep. After it is over, about 4-4:30, Amy wheels me to the car and home and helps me get in bed, where I sleep till about 2AM. I get up for a few hours and then lay back down for a couple more till daybreak. By this time, the Benadryl has worn off, but the steroids have not. :) So, for the rest of the day, I am wide awake and high energy on steroids. (By “high energy,” I mean my normal energy level pre-chemo.) So, Saturdays are the best day of the week — I’m rested from all the sleep, and feel more like myself, as far as energy goes.
The only chemo side effects I’ve had so far are fatigue, occasional headaches and joint pains. Dr. told us yesterday to expect the fatigue to increase with time. And, of course, in the second phase of my chemo (in Nov. and Dec.) I will be on two chemo drugs that are known for major side effects – but hoping and praying it won’t be as bad as I’ve heard. My hair should begin falling out any day now (usually day 14-17 after chemo begins – which is this weekend) but I am prepared with two wigs — and I’ve mentioned before that I like them better than my own hair. :).
When I was very young, my Mom taught me about “countdown calendars.” The first one I remember her doing was when I was about 6 years old and we were going on a trip to Chicago to visit my cousins. So, in honor of my Mom, I made a chemo-end-date calendar and “X” off another day each morning. :)
September 8 – Thank You for the Awesome Event!!!
Saturday was incredible! Considering the request that people not come if they were recently sick, or around others who were sick, I didn’t know how many people to expect. But, the turnout was wonderful! :) I have felt the prayers and support of so many people since my diagnosis — but to be physically surrounded by this crowd of people who mean so much to me, and who love and support me, was amazing and an experience I will always cherish. I truly felt that I was (as the flyer suggested) “cheered on to victory.” A special thanks to:
Allyson Tuttle, Joan Miller and Theresa Marchese – for planning this event, the decorations, the creative set-up (and for the use of Theresa’s home)
Eileen Bennett – for the two beautiful flower arrangements
Dorie Poche – who created the flyer
Kerry Ermon – who entertained us with her flute
Dr. Bob Stewart (Director, The Institute for Christian Apologetics) – who led us in a special prayer
Allyson Tuttle, Joan Miller, Theresa Marchese, Gwenn Black, Kerry Ermon, Gene Ann Balsamo, Barbara Gordy, Ann Prince, Sandra and LaNaya Wilkins and Jane Beebe – for the fabulous food
And, all who attended (in person and in spirit) and cheered me on!
September 13 – Chemo / Job Update / Next Trip to M. D. Anderson
Yesterday I had the 5th of 12 chemo treatments in phase one of treatment plan (12 rounds of Taxol – one per week). Phase two is scheduled for November and December (4 rounds of Adriamycin and Cytoxan – given every 2 weeks). I am very thankful that it worked out this week. Bloodwork is done prior to each chemo treatment and if my blood counts had been any lower, chemo would have had to be postponed until they could get my counts up (through possible injections, transfusions, etc). The previous two weeks I was at the lowest level allowed before having to postpone treatment (“GRAN”number of 1.5) but thankfully, my number rose this week to 2.0. :)
I am in the process of being approved for short-term disability so that I can discontinue working. If all goes as scheduled, I will be out on leave as of about a week from now, and would be back at work early March after my recovery from surgery. I’m really looking forward to not having to work so I can get more rest and focus on getting well. My activity level the last two months has been off the charts — even for someone who is “organized” :). I am so looking forward to the slower pace. Also looking forward to having the time to be able to personally thank you all for your gifts and support. And, it will be nice to have time to reply to emails and return calls!!! (Thanks for understanding my circumstances that have prevented me from doing so before now.)
Amy and I leave a week from Tuesday for M. D. Anderson. I will have one test (ultrasound) and several appointments. The ultrasound is to determine if the tumor is shrinking. Of course, it would be wonderful to hear that it is. Although, my local oncologist (Dr. John Cole) said that if it is not shrinking to consider that we are only half-way into phase one of chemo and have not yet had any of the hard-hitting chemo that is in phase two. Glad to know that, and I am still hoping and praying for at least some shrinkage.
Looking forward to a nice weekend and hopefully a win by the Saints!!! I hope you have a nice weekend, too – and that your team wins – unless your team is the Cleveland Browns, that is. :)
September 15 – Baldness Has Its Benefits :)
2) Eliminates all possibilities of a “bad hair day.”
3) You get to wear a wig (that just so happens to look better than your real hair looked) and people tell you that it makes you look younger. I may never stop wearing this wig!!! :)
September 20 – Prayer and Good News!
A Special Time of Prayer
Wednesday night there was a special time of prayer for me at church by my pastor, the elders and others. I was very touched by this experience.
Good News
Yesterday morning I had an early appointment with Dr. Cole, my local oncologist. Based on the physical exam, he believes the tumor is smaller – that it has shrunk about ½ of a centimeter — and he said it is also “less defined.” This Wednesday, at M. D. Anderson I will have an ultrasound that will hopefully confirm Dr. Cole’s findings. In the meantime, I’m VERY thankful to be hearing the words “smaller” and “less defined.”
And yesterday afternoon, I learned that my Gran # (compilation of a few blood count numbers) improved once again – from 2.0 to 2.1! Every point counts – as this is the number that determines whether or not I am healthy enough for chemo. Under 1.5 is when they usually postpone chemo till they can get the blood counts up. I was 1.5 for my 3rd and 4th weeks of chemo. Last week my number improved to 2.0, and this week it is still on the rise! (Thank you, Lord!)
Speaking of chemo, these are two pictures were taken at the Gayle and Tom Benson Cancer Center (at Ochsner Hospital). The entire 5th floor is for chemo. It is beautifully designed. This is the first time my treatment was scheduled for this side of the building with the gorgeous view. The Cancer Center building is in between the hospital and the river. You can see the levee in the picture. Enjoyed the beautiful view – that is, until they hit me with the IV of Benadryl and knocked me out! :)
September 25 – More Good News! :)
Amy and I left early Tuesday morning for my tests and appointments at M. D. Anderson and returned late last night. I am thanking God this morning for the news we got yesterday. Chemo is working … tumor is smaller. :) And, once again, no visible signs that the cancer is in my lymph nodes (which the testing done has an 80% chance of being accurate).
As of August 1 — 1.4 x 1.4 x 1.1 centimeters
As of September 24 — 1.1 x 1.1 x .9 centimeters
Amy did the math to calculate the total volume of each size, (If, like me, you don’t remember how to do this, you multiply all three numbers — a x b x c). Total volume as of August 1 was 2.156 centimeters. Total volume as of September 24 is 1.089. That means that the tumor is about half the size it was!!! :) Interestingly, when we later met with the oncologist the first thing she did when she looked at the radiology report was the same calculation Amy had done (and, of course, arrived at the same results).
In case you’re wondering what will happen if the tumor totally shrinks down to nothing, I asked this question early on when I started chemo. I was told that (considering that this is “triple negative” cancer) the treatment plan remains the same — to be on the safe side. So, chemo will continue and surgery will follow. But, the fact that the tumor is shrinking is certainly great news and a good indication that if any cancer cells slipped through and traveled anywhere else that they will be killed too since the chemo is not concentrated into one area — it travels throughout my entire body. (And, speaking of chemo, if things continue as scheduled, as of today I am exactly one-third finished. :)
And, I got some more good news earlier this week. :) Monday I received notice that I am approved for short-term disability. So, I am now officially off work till after I heal from surgery. Very nice that (in light of chemo side effects) I am finally able to slow down and rest and focus on getting well. If things continue as scheduled, surgery will be in January and I’ll be back at work sometime late February or early March.
And on a different subject … this morning I am also thanking the Lord for my beautiful, wonderful daughter (whose 29th birthday we celebrated this past Sunday). Amy has been incredible throughout this whole ordeal!!! We have enjoyed so much quality time and have made so many memories that I will always cherish. Love you so much, Amy!!!
October 11 – Chemo Update / Marcita
Well, phase one of my chemo is nearing an end. It is 12 rounds of chemo (1 each week). Yesterday I completed #9 — 3/4 finished! :) Beginning in November I will be on the second and final phase of chemo. It will last through December. The chemo I will be on these months (adriamycin and cytoxan) are typically given together and nicknamed AC. But there is another name that most people call this combination … “the red devil” — because it is known for its major side effects and the chemo itself is red in color. While at chemo yesterday I met a neat lady who is also on chemo for triple negative breast cancer … Marcita (an attractive lady, probably late 40s/early 50s). Marcita seems to be one of the favorite patients in chemo. The nurses light up around her. Early in her journey, when Marcita learned that just about everyone referred to the AC as “the red devil” she protested and said that nothing called the red devil would be put in her body. She didn’t plan to refuse the drugs, but informed the staff that she would give it another name. So … not only did Marcita rename that chemo, but she also printed out a sheet of stickers with it’s new name for the nurses to put on her bags of chemo … “The Blood of Jesus.” :) And, she also printed an additional sheet of stickers referencing two scriptures, which also goes on the bags.
Well, yesterday was Marcita’s final chemo, but we plan to keep in touch. Before she left, she passed her baton to me … she gave me what was left of her stickers to be placed on my chemo! :)
There’s a nice tradition at the Gayle and Tom Benson Cancer Center … a celebration when it is your final chemo. You get to ring a bell and everyone on the entire floor can hear it, and when they do, the place erupts in cheers. Yesterday, Marcita got to ring the bell. I got to cheer — to celebrate her final chemo. I also celebrated her great faith and perspective … and being the recipient of her stickers. Thank you, Marcita!
October 25 – Treatment Update / Opportunity to Share My Story
Yesterday I completed the 11th of 12 chemos in phase one of my treatment. Some minor side effects, but manageable. One of the side-effects is neuropathy — slight numbness on the bottom of my feet, and right thumb — but most of the time neuropathy (when caused by this current chemo) will improve or disappear within a few months or years after the chemo ends. But even if it remains as is, at this level it is manageable. New chemo begins November 7 and it does not cause neuropathy. If all goes on schedule, the final round of the new chemo will be on December 19 (at which point I will get to ring the bell! :). Talked with M. D. Anderson last week. The surgery is supposed to take place there in Houston 4-6 weeks after the final chemo — so mid-late January. Will be having a bi-lateral mastectomy. Have not yet made reconstruction decisions. Recovery time should be about 8 weeks. Looking forward to a wonderful Easter! :)
As you know, October is breast cancer awareness month. Long story, but I was given the opportunity to share my story this past Thursday night (exactly three months from the day I received the diagnosis) with a small group of women at an event sponsored by Raymond James Financial. They also distributed the flyer I had done (“My Three Requests for Women for Breast Cancer Awareness Month.”)
November 1 – Good News! :) / Chemo – Phase One Completed and New Phase Set to Begin
Yesterday was my once-every-three-weeks exam. Good news! The doctor said that what remains where the tumor was is a “thickened” area (the hard mass continues to dwindle into just a thickening). :) The best case scenario is for all traces of the tumor (including the thickening) to be gone by the time of surgery, and I’m definitely moving in the right direction toward that. If that happens, it is known as a “pathologic complete response (pCR).” And, survival odds increase if the chemo treatment results in a pCR. SO thankful to have gotten this news! That, preceded the night before by the New Orleans Saints making #1 in our division, and beautiful weather, made for a very nice day!!!
This news from the doctor was prior to my 12th and final chemo treatment of phase one chemo (which was yesterday after the exam), and I still have the next phase of chemo which starts November 7 and the last of that chemo is December 19 (with chemo remaining in my system till January 2) . So, I am hoping and praying that between the chemo I got yesterday and the remaining chemo I get will ultimately result in a pCR.
The new chemo begins this Friday. I have heard many things about this chemo from the medical staff and from patients I’ve met. As I mentioned before, it is known for its major side effects. More specifically, lowering blood counts, major nausea and fatigue, mouth and digestive tract sores, bone pains (similar to the flu), and a few other side-effects. It is not uncommon to need a blood transfusion and/or be hospitalized at some point on this chemo. (So, if that happens, please don’t be concerned – it is normal.) BUT, I am still praying that things go better than the norm. I actually heard from a friend of Amy’s yesterday. Her mom had this chemo and she had an easier time of it. That was good to hear! And, it is certainly my prayer that I will be spared from some of this.
Another prayer is that after phase one chemo is out of my system (by the end of this week) that the neuropathy I have developed will begin to decrease and eventually disappear. I’ve been told that if it does improve, it usually does so within six months to a year after being off of it, and that about 70% of the time it will improve or disappear altogether. The phase two chemo does not cause neuropathy, however it can cause permanent heart damage. But, I had an appointment this week with a cardiologist who specializes in oncology related cardiology issues. He was very encouraging. He said that permanent damage from this chemo only happens 5% of the time, and that I am starting off with a very healthy heart. He will be testing me each time I get this new chemo and if it appears that my heart is headed toward damage he will put me on heart meds to try and alleviate it.
To protect myself from catching something (while my immune system is compromised), I plan to hibernate during this new chemo and to not have any company – except for Amy. We plan to get out for some car rides, and I’ve made a list — you know I like lists :) — of non-strenuous projects I can do while home. I also have a stack of books to read, and I plan on seeing ALL the good Christmas specials on TV this year (the ones that I always intend to watch, but am too busy).
November 7 – So Far, So Good :)
Started the new chemo today and so far, so good. :) I had a sinus/bronchial cold over the past week and there was a question about whether or not I could have the chemo or would have to postpone it. Met with my oncologist this morning and after the exam he decided I could safely have the chemo. Very thankful for that!
So, Amy and I went to chemo this afternoon and I was pleasantly surprised to learn that I was not going to get my usual Benadryl pre-med! For the first time since starting chemo I was wide awake during the entire treatment, and didn’t have to be wheeled out, or go right to sleep when I got home about 5PM — which messes up my sleep pattern through the weekend, because I was up every Saturday about 2AM through the rest of the day. So, I had the new chemo — placing the stickers on the chemo bag that Marcita had given me. :) Was able to walk out of chemo, and I am very much enjoying being awake on this Friday night. :)
They gave me two IV pre-meds to help with nausea prior to the chemo. Plus I was given four prescriptions for nausea. I automatically have to take two of the four, and if I’m still nauseated, I take the third, and if those three don’t work, I take the fourth. Hoping that with all of these, at least one of them will do the trick!
Tomorrow morning, I will be going back to Ochsner for the shot to help boost my blood counts. This typically causes bone pains — feels like the flu for several days. But, I also have some pain meds for that if I need them.
I thank the Lord for all the meds available to us today … that can kill cancer, and help us get through the treatment side-effects!!! I still begin each day by highlighting one more day on my chemo countdown calendar. As of today I am two-thirds finished — 85 days behind me, 42 to go. :)
November 17 – First 10 Days on the New Chemo
I’ve had some of the typical side effects — mouth sores, more fatigue, some loss of appetite, and a few fingernails turning dark and tender (will probably lose them).I also had another symptom within the first few days of the new chemo — major swelling (about 10 pounds worth!) I contacted the heart specialist. This is one of the symptoms he wanted me to report to him if it happened because he said it could be an indication that the chemo is affecting my heart. He scheduled me to have an echo-cardiogram (a non-invasive ultrasound of the heart that lasts 30-45 minutes). The day after my echo-cardiogram, the doctor emailed this to me: “Your echo-cardiogram is completely normal. This is good news.” Agree … very good news! :) And, glad to report that the swelling has all gone away. It was probably related to the steroids that I had to take the first few days after this chemo.
More good news … I took the nausea meds as prescribed and have had no nausea. Also, the Neulasta shot that I received the day after chemo (that is supposed to cause bone pain similar to the flu) did not do that to me. The nurse who administered the shot said she had cancer and had the same treatment and that she didn’t have pain with her first three shots — only the last one. Don’t know how it will play out for me, but appreciate that at least I got a reprieve with the first shot.
Also had another development last night. Started this weekend with a rising temp, runny nose and a lot of coughing. When you’re on chemo the doctor wants you to go to ER if temp hits 100.4. Since blood counts can be so low, it is important to catch any infection asap. My temp hit 100.6 and Amy and I headed to ER. Doctor there ran several tests, and told us that if my blood counts came back low I would be admitted to the hospital, but if not, I would be discharged. Over 5 hours later, all the test results were in and thankfully my blood counts were not low. :) So, I was able to come home. I was given an antibiotic to take that is stronger than the one I was given several weeks ago when I had similar symptoms.
Tomorrow marks another milestone with my chemo treatment. It will be day 96 of chemo with 31 left. That means I will be three-fourths of the way from the first chemo treatment to the last. :) Chemo is not easy to go through, but I keep reminding myself that all of this discomfort is for a greater purpose — to kill the cancer and help restore my health.
December 4 – Brief Hospital Stay / Good News from M D Anderson :) / Thank You, Amy!
Early last Friday evening (11/28) my temp started rising and eventually became high enough that I had to go to ER. Tests were run and it was determined that my blood counts were too low. So, I was admitted to the hospital for observation. Thankfully, even though my blood counts remained the same, my temp began to lower and Saturday night I was discharged.
Good News from M D Anderson :)
I am thanking God this morning for the good news we received yesterday at my M D Anderson appointments:
My blood counts are back to within normal range, which means that as long as they stay that way till tomorrow, my chemo will not need to be interrupted (which can happen when blood counts are too low). Tomorrow will be my 15th of 16 chemos and, God-willing, my final chemo will be two weeks later on December 19, at which time I get to ring the bell. :)
And, the best news … the ultrasound shows that the tumor is only 20% of its original size!!! :) AND, my doctor said it is possible that the remaining “tumor” showing up in the ultrasound is actually non-viable (dead) cancer cells. She said that having a good response to chemo is significant, and indicates less chance of recurrence. Further confirmation will take place at the time of surgery, but the current ultrasound findings are a good indication that I’m headed toward a “pathologic complete response” (which means no viable cancer cells at the time of surgery). That, along with no findings of cancer in my lymph nodes is what I am hoping and praying for.
Also, for several reasons based on the good results of this ultrasound and in-depth conversations with several doctors yesterday at M D Anderson, I am now considering and exploring the possibility of a different surgical option instead of the bi-lateral mastectomy. Before my final decision I wanted time to pray about this and to also gather more information which I will do at my next appointment at MDA in a few weeks.
Thank You, Amy!
I just have to give a shout out to my daughter, Amy, for all she has done for me! What most of you do not know (because Amy wasn’t ready to let it be known until very recently) is that although she is already an attorney, she has been back in school for three semesters now taking pre-requisite courses preparing for grad school and a new career in health sciences. I cannot tell you how much she has had to juggle to bring me to M D Anderson, accompany me at all of my chemos and all significant doctor appointments, take me to ER, run errands for me, and to just be there for me. And, she has done all of this with such a wonderful attitude. She is also maintaining her 4.0 GPA in school at the same time! I thank God for my sweet, amazing daughter and I know that whatever health sciences career she chooses, she will serve her patients well.
December 20 – Final Chemo Yesterday!!! :)
Yesterday was my final chemo. :) Here is a picture of me with the Ring the Bell sign. This is what the chemo patients read out loud before ringing the bell. It reads: Ring the bell three times well, the toll to clearly say, “My treatment’s done, this course is run, and I AM ON MY WAY!”
I thank the Lord that I was able to stay on schedule with the chemo (no interruptions for blood counts being too low), and for the side effects being much more bearable and manageable than they could have been. And, I am SO very thankful for all of you who have been checking in on me through this post, and for the sweet, sweet comments you’ve made, AND for all of your prayers! The outpouring of love and support I have experienced means more than you’ll ever know! Love you all, and hope you and your family have a wonderful, blessed Christmas!
Amy and I head back to M D Anderson on December 29 to meet with the surgeon. Shortly after that meeting I should know surgery date and details. Will post that info when I get it.
December 30 – Post Chemo / Plans for Surgery
Post Chemo
My last chemo was December 19 and it was a two week dose. So, as of January 2 the chemo side effects should gradually begin healing. Very happy to be at this point! I have ten remaining side effects, but the two I’m most looking forward to getting behind me are the extreme fatigue and getting my taste buds back. I’ve decided that next Thanksgiving and Christmas I’ll treat myself to two helpings of each dish — to make up for this year. :)
And, as for another one of my side effects — my hair — from what I hear it will take awhile to begin growing back and then it will be months before it is long enough to stop wearing the wig. People say it often grows back very different, too. So, do you think my thin, fine hair may grow back thick and healthy? (I’m going to miss my wig!) :)
Plans for Surgery
Amy and I just returned from M D Anderson last night. I made a final decision to have a lumpectomy instead of a mastectomy (as I had originally planned). We met with my surgeon and got all the scoop about what to expect.
I will head to MDA January 15 (a Thursday) to prepare for the seven pre-op appointments I have on Friday. Following will be a three day weekend (MLK Day). Planning to have a mix of relaxation and fun for those three days. Surgery is scheduled for Tuesday, January 20. Surgery is “same day” — so no overnight in hospital. The doctor said I need to stay in the Houston area the first night and then I can return home the next day.
After 4-6 weeks of healing the plan is for me to return to Houston and remain there for another 4-6 weeks of radiation. (I’m not sure yet where I will be staying during that time.) Radiation will be daily Monday through Friday. The doctor said that the two main side-effects of radiation are fatigue and skin issues at the site of radiation — the feeling of a bad sunburn. However, I was told that because chemo-fatigue is much more extreme, the radiation-fatigue will feel like an improvement.
And, shortly after radiation I should be able to return to my normal, pre-cancer activities and work. Oh, and live happily ever after. :)
2015
January 16 — Chemo Recovery / In Houston for Surgery
January 20 – Surgery Update
Mama is out of surgery and we are in the recovery area. There was no indication of cancer cells in the lymph nodes. Everything went smoothly and she was in surgery for only about 2 hours. We will be leaving the hospital in a couple hours and will be recovering tomorrow and Thursday in the hotel. The hard part is over! A huge thank you to everyone who sent thoughts and prayers our way.
January 23 – Back Home
Thanks everyone for your love and prayers! I’m so happy to have the surgery over with and to be back home (arrived last night). And I’m so grateful to have heard the words “no cancer found in your lymph nodes.” It’s funny how anesthesia causes a person to react. Amy said that when I was coming out of anesthesia it was really comical because I asked her numerous times in a row if they had found any cancer in my lymph nodes. :)
With regard to the lymph node situation … I am thankful to have gotten through the first two hurdles. Early on in this journey, no cancer cells were seen on the ultrasounds or the MRI (the first hurdle). Then, during the surgery, when they tested several of my lymph nodes they saw no cancer cells. That was the second (big) hurdle. There is one more to go. Sometime next week I will receive a phone call from MDA about my pathology report — the final test on my lymph nodes and they will also let me know about the site of the tumor (whether or not there were live cancer cells). The doctor told me there is a 90% chance of accuracy on the results from the preliminary testing of my lymph nodes (the test done while I was in surgery). God-willing, the pathology report will confirm that the results I got Tuesday are correct and that the margins around the site of the tumor are “clean” (no live cancer cells). I am hopeful and prayerful that the report will be good news, and will share it on caringbridge as soon as I can.
In the meantime, I am enjoying being back home and surgery recovery is coming along just fine. Have not had to take any pain meds since the night of surgery. I have follow-up appointments at MDA February 2 and 4. It’s possible that after those appointments the next time I head that way will be for the 4-6 weeks of radiation that I will receive — the final part of my treatment. :)
Thanks again for your many messages, emails, texts, cards, gifts, errands, calls and visits. On occasion, the medical staff at MDA has asked me about the kind of support system I have back in New Orleans. It is hard to answer that question without shedding a few grateful tears. I have let them know that I could not have a better team of people cheering me on. Love y’all!!!
January 26 – Great News Received Today!!!
I received a call late this afternoon from my surgeon at MDA. The pathology report is in and it’s good news! :)
The report confirmed that: 1) there were no cancer cells in my lymph nodes; 2) the tissue that was removed had “clean margins” (no cancer cells); and 3) what was left of the tumor consisted of 99% dead cells and 1% viable cells. But, of course, the 1% viable cells were removed with the tissue.
I return to MDA next week for follow up appointments to the surgery, and to make plans for the radiation I will receive. (The radiation is routine and just a safeguard.)
I am beyond grateful to God for this good news!!! And, to you all who have cheered me on!!! The finish line is definitely in sight!!!
February 5 – New Information / Future Screening and Recommendations / Plans for Radiation / Celebration Point
New Information
I was in Houston Monday through Wednesday of this week for follow-up appointments. Doctors are pleased with how I’m healing. I learned while there that the original size of the tumor was actually 4 cm — not 1.4 cm as several ultrasounds originally showed, or 2.5 cm as the MRI showed. (They are able to tell what size the tumor was by the size of the “tumor bed” that is visible when they do surgery.) That means the tumor was on the high end of stage two. Actually, I am thankful that I learned this after last week’s good news — that I had such an ideal response to the chemo. My doctor said that If I had not had the good response to chemo, considering the tumor was 4 cm, I would have had a 50-60% chance of having a recurrence of cancer (and the prognosis when there is a recurrence of triple negative breast cancer is grim). Another reason for me to thank God for last week’s good report! And, although no one with cancer is ever totally “out of the woods” with regard to having a recurrence, because of my great response to the chemo, my prognosis is very good. It is much more likely that I will not have a recurrence than that I will.
Future Screening and Recommendations
In addition to all of the routine tests that were done prior to me having cancer, every four months for the next two years I will have bloodwork and a physical exam. In the meantime, my doctor said she recommends that I focus on the things that I have control over: 1) getting all screenings done as scheduled; 2) exercising at least 150 minutes a week; and 3) eating a very nutritious diet. These things are proven to reduce the risk of recurrence (and for those who have never had a cancer diagnosis — proven to help prevent many types of cancers).
Plans for Radiation
My radiation will be done at M D Anderson. I will have my radiation “simulation” on February 23. (That is when all the preparations are made for radiation.) Radiation begins March 2 and will probably end March 27. It will be once a day, every day Monday through Friday. And, I got some great news today … the company my brother Jimmy works for owns a beautiful condo in Sugar Land, Texas (right outside of Houston) and they are going to allow me to stay there for the month of March!!! I have already stayed there once for three days. It is a lovely area in the heart of Sugar Land Town Square. And, I’ll get my radiation at M D Anderson’s Sugar Land Clinic, which is only one mile from the condo!
Celebration Point
One good thing about TNBC is that the “celebration point” is 3 years — instead of 5 years for most other cancers. This is because it is very fast growing, so if there is a recurrence with TNBC it almost always surfaces within the first two years after treatment. So, adding one year to that, if there has been no recurrence at the three year mark it is unlikely there will ever be a recurrence. The countdown begins the end of March after I finish radiation. And, I’m sure it will come as no surprise that I will have a 36 month chart and “X” off one box each month. :) God-willing I will not have a recurrence, and that being the case, at the end of the 36 months you can better believe I will host a big celebration party! Out of curiosity I checked the 2018 calendar to see what weekend the celebration would likely be, and it was March 31/April 1 … which happens to be Easter weekend! So … save those dates!!! :) In the meantime, I’m still praising God for, and celebrating, the good reports I got last week.
February 21 – Major Changes to Radiation Plans
It’s been an interesting week and a half. :) As mentioned in my last post, I was all set to leave for Houston this Monday for my simulation, and had plans to be there the entire month of March for radiation. But, all that has changed.
Out with the Former Plan
I received a phone call from M D Anderson Wednesday, February 11th, regarding a roadblock with my insurance (Blue Cross/Blue Shield). I was told that if I have my radiation at MDA it could cost me tens of thousands of dollars — even though, after my surgery last month, I’ve already met my 5K maximum out-of-pocket expenses for out-of-network providers for the year 2015!!! (Just when I thought I finally had a grasp on this whole insurance thing! :)
After a gazillion phone calls over the last week, I got the final word as of this Tuesday that my out-of-pocket amount for radiation would be 31K!!! (Not quite in my budget!!! :) MDA told me that this seems to be a new trend they’re seeing that started the beginning of this year. Whereas, in the past, BC/BS regularly accommodated out-of-network patients who wanted to have their radiation at MDA, they apparently just stopped doing so — which forces anyone who is not very wealthy to get radiation in their own local network.
Although MDA is my first choice overall and for radiation, I am thankful that I was at least able to have my surgery there and to have them oversee my care since the beginning of this journey. And, I have to say there are some advantages to having my radiation locally — especially being able to be in my own home instead of out of town for this long period of treatment. (As nice as the Texas condo is, there’s truly “no place like home.”) In the future, I will probably continue to go to MDA for most of my routine screenings and still have my MDA oncologist oversee my care although any major cost for services will have to be considered more carefully.
In With the New Plan
After speaking with three local providers, and meeting with two radiation oncologists, I decided to have my radiation through East Jefferson General Hospital. Amy and I had a long talk with the doctor there and we really like him. I actually had my radiation simulation done there yesterday afternoon, and my radiation will probably start on March 2. The schedule will be somewhat different from MDA’s radiaiton schedule. EJGH gives the same total amount of radiation but in smaller dosages over a longer period — 6.5 weeks as opposed to 4 weeks. So, I should finish up around mid-April.
Although initially this change was a disappointment, I trust that God allowed this for reasons that are good so I am at peace with it all. And, now that I am so close to the finish line, it’s feeling really great! :)
February 25 – Radiation Began Today
Today was my first day of radiation, and it’s a very simple procedure! The total time it takes is about 15 minutes. That includes changing into (and out of) the gown, getting situated on the table, and being “zapped” with radiation (which is less than a minute total time). Amy was with me for this first time, and got to observe most of everything done. The people that work there are very nice, including the receptionist who is a hoot — really funny, but at the same time efficient. She is perfect for that job.
Unlike chemo and surgery, radiation is normally quite uneventful. So, if there are no updates for awhile, please know that all is “status quo.” I’m not sure of the exact end date yet. My treatments are daily Monday through Friday. I will have a total of 33 treatments, but was told there could be times of delays (a couple of days here and there). I will definitely report when I have my final treatment. Wonder if they have a bell to ring? :) If not, I’m sure I’ll figure out some way to celebrate the end of the last phase of this cancer treatment … which won’t be long now!!! And, being that this is New Orleans, I have a feeling the celebration will somehow include some good food! :)
March 3 – Today is Triple Negative Breast Cancer Awareness Day
March 3 is the Annual Triple Negative Breast Cancer Awareness Day.
TNBC is the fastest growing, hardest to treat and most likely to recur breast cancer — BUT that doesn’t mean the outlook is grim. In fact, although the survival odds with TNBC are not as favorable as other breast cancers, still more women survive it than do not. And in my case, I know women who had much larger tumors than I had, and some who had it in their lymph nodes, and years later they’re still cancer-free. There is hope!
TNBC has some familiar faces: Two news correspondents at FOX News had this type of breast cancer: Jennifer Griffin, who is in remission, and Annie Goodman, who died (at age 33) in December. This is also the breast cancer that Robin Roberts had and beat. And, Joan Lunden is currently battling TNBC.
Thankfully, there is much research going on for TNBC. I pray that one day soon there will be a cure for TNBC and all other cancers.
If you’re interested … there is more information on TNBC, on the “About TNBC” tab on the Triple Negative Breast Cancer Foundation website: www.tnbcfoundation.org.
March 23 ~ More Than Half-way Finished!
Just a quick note to say that all is going well with radiation. The only two side-effects are mild fatigue and skin irritation. However, compared to chemo this is a “piece of cake!” I’ve had 19 treatments so far, and have only 14 to go and then … the cancer treatment is officially over. :)
April 3 – Very Grateful This Easter
I have so much to be thankful for this Easter!
What wonderful friends and family I have! You have been so caring and loving to me during this cancer journey. I have experienced so many expressions of love from you that I will always remember — the prayers, the cards, the visits, the encouraging notes to me and your sweet comments posted to this journal, the gifts, the meals, the errands. All of them, treasures!
Another blessing … the incredible generosity of SO many! What a humbling experience! I am thankful for your many donations toward my medical expenses, travel expenses to/from M D Anderson, and in helping me for these many months when I was only receiving 60% of my salary. Your donations made it possible for me to not have finances on my mind in addition to everything else going on. This was a huge gift to me! AND, I am very happy to report to you that I learned this Wednesday that my employer (Catholic Charities) has tapped into some funds that will result in the balance of my medical expenses being paid off!!! What a gift!
And, I am also so thankful this Easter for God’s amazing grace. At age 21, He forgave me of my sins, came into my heart and changed the course of my life — all made possible because of what took place that first Easter! God bless you and your family this Easter and always!
April 14 – Crossed the Finish Line! :)
Thank you, Lord!!! And thank you family and friends for cheering me on for the last 9 months!!!
My final radiation treatment was yesterday. I was given a certificate signed by the doctor that says I am “hereby certified to many weeks of rest and relaxation and pampering to regain good health and wellness.” And, Rita (the fun person who works at the registration desk) pointed out to me that there is no expiration date listed on the certificate. :) Amy came for my final treatment. She surprised me with a corsage (as the photo shows, I obviously don’t know how to pin them on. :), and a balloon that reads “With God all things are possible.” And … she took me to lunch. A very special time with my favorite person in the world!
Woke up this morning and it felt even better than I imagined it would to be totally finished with treatment. Yep! The first day of the rest of my life. My new chapter has officially begun.
About my future plans: As for follow-up screening:
I return to M D Anderson early August for routine tests. I consider my oncologist at MDA to be my primary oncologist but it is still advisable for me to have a local oncologist too. So I am in the process of “shopping” for one. I’ve got appointments scheduled with doctors from two different hospitals next month.
About my job:
I’m looking forward to getting back to work in a couple of weeks. Now on to the important question … what about my wig? :) Well, my hair is just starting to grow back, and it is still way too short to know how it will turn out. (Chemo can totally change a person’s hair — in my case, that could be a good thing. :) So, time will tell whether the wig becomes a permanent fixture or not. I do have to say that the ease and convenience of wigs can really spoil you!
And, what further plans do I have for celebrating? One thing learned on the cancer journey is that every day on planet earth that God gives us is reason to celebrate. So, I hope to remain mindful of this and savor each day. AND God-willing, the cancer will never return and I’ll be throwing a big party for you all in three years. My 36 month countdown calendar is already on my wall. So please save the date … April 14, 2018!!! And, interestingly, that date falls on French Quarter Fest weekend, so it looks like the stage for celebrating is already set! :)
God bless you all!!! Love you!!! And thank you for ALL you’ve done!!!
June 25 – A Few Months Post Treatment
Since my last journal entry, the pace of my life has picked up quite a bit. I’ve been back at work since May 1. It’s great that life is starting to feel normal again! Although my stamina is not yet 100% (that is supposed to take 6-12 months) I have enough energy to do what I need to do during the day, and I mainly rest in the evenings. Little by little my energy is increasing.
Other than the slight difference in my energy level, the only other side effect remaining is a little neuropathy in the bottom of my feet — but it has steadily improved over recent months and is only a fraction of what it was originally. It is likely that it will eventually fade completely. And, considering I had the lifetime limit of three different chemos (which are known for potentially causing serious and permanent side effects), I’m very thankful that I have not had other issues. I’m also not bald anymore. :) My hair is growing back. Until now, I had never seen myself gray before — thanks to Clairol! In another month or two, although it will still be short, it will be long enough for me to feel comfortable wearing it — that is, if I decide to become gray overnight! I’m trying to avoid toxins and unnecessary chemicals — so it is unlikely I will want to color my hair. For now, the wig still works fine, and I’m sure in time I’ll figure out what I want to do.
I learned a little more about triple negative breast cancer recently. With this type of cancer if a person has a recurrence it almost never happens during the first year after treatment. If it is going to happen, it almost always happens between 12-24 months following treatment. That’s why, when people that had triple negative cancer hit the 36 month mark post treatment and have not have a recurrence, the odds for remaining cancer-free greatly increase. And, because of my wonderful response to the chemo, and no finding of cancer cells in my lymph nodes, one doctor said my odds of not having a recurrence are about 80%. Sounds good to me! :)
I found a great oncologist to do my follow-up care – Dr. Udhrain at East Jefferson General Hospital. He is head of the oncology department. He’s fairly new — was previously at Mayo Clinic. Dr. Udhrain believes in monitoring his patients closely after treatment. In my case this means for the next several years I’ll have a mammogram and ultrasound every six months, and bloodwork every three months. Interestingly, the other oncologist (also head of his department at another hospital) was planning to do only one mammogram a year, no ultrasounds and no bloodwork. One of the things that has amazed me during this cancer experience is how doctors (good doctors) can have totally different viewpoints on things. I was a believer in getting second opinions before my diagnosis, but my experience over the last 11 months has once again confirmed why second opinions are important. I will still be going to M. D. Anderson annually (each August) for some of the testing and to touch base with them, but the rest of my care will be with Dr. Udhrain.
Unlike other types of breast cancers, there are no medications (like Tamoxifen) to take post treatment. So, as my M D Anderson oncologist recommended, I am focusing on the things I have control over … diet and exercise. Many studies have proven that 3 or more hours of exercise a week and the recommended diet will increase a person’s odds of not getting a recurrence (and actually for those who have never had cancer, this increases your chances of not getting cancer). So, I do treadmill 30 minutes a day, six days a week. My diet is primarily plant based — plenty of fruits and vegetables (a large variety), whole grains, beans, no red meat, small portions of fish and chicken, and almost no refined sugar or processed foods. I buy organic for most foods, but here’s a tip I learned from the doctor at MDA … you don’t need to buy everything organic. He recommended checking out the “Clean 15” list by the EWG organization (which is online), and these fruits and veges are fine without being organic.
So, I’m at peace, with doctors saying my odds of not having a recurrence are very good, and I’m eating healthy and exercising, and praying for a good outcome. On the 14th of this month I crossed off month #2 on my 36 month “Gratitude Celebration” countdown calendar — and all is well! :)